Sickle Cell Trait Awareness
Cincinnati Children’s Hospital
In collaboration with: Charles T. Quinn, MD, MS and Lisa M. Shook, MA, CHES
In collaboration with the Hematology Division at Cincinnati Children’s Hospital, this project focused on improving education and information in the community on sickle cell trait through an online presence. Over the course of 15 weeks, the LWC team reached out to the local community to understand what is currently known about sickle cell trait.
Sickle cell trait, most commonly confused with sickle cell disease, is a genetic trait that has little to no symptoms or side effects. However, when two people with the sickle cell trait have a baby, that baby has a 25% chance of ending up with sickle cell disease. Sadly this leads to a relatively short life with extremely painful symptoms. The Live Well Collaborative was tasked with developing a digital educational platform to spread the word about sickle cell trait and to promote discussion among those with the trait.
To understand what the public currently knows on the topic, the team set out to attend sickle cell community events, recruiting teens and young adults for input. During this time, they learned about digital habits and preferences, which helped guide them in creating an effective online tool. They developed various strategies for communicating the message, and ideated website prototypes for further testing.
Through continuous feedback from the public, the team used their findings to create one cohesive resource across desktop and mobile platforms. The website provides a single resource to answer any questions sickle cell trait carriers may have about the disease and encourages them to approach
pregnancy and family planning in a responsible way.